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    • Implementando un registro poblacional de enfermedades raras en España: la experiencia de Navarra 

      Vicente Cemborain, Esther Upna; Guevara Eslava, Marcela; Lasanta, María J.; Ramos Arroyo, María A.; Ardanaz, Eva (Ministerio de Sanidad y Consumo, 2018)   Artículo / Artikulua  OpenAccess
      In 2012, the Spanish Rare Disease Registries Research Network (Spain-RDR) was consolidated with the aim of creating a Spanish population- based Rare Diseases Registry. In order to achieve this, each of the 17 Spanish Regions ...