Open Access
Care provided by the father to the child with cancer under the influence of masculinities: qualitative meta-synthesis
(Associação Brasileira de Enfermagem, 2018) Polita, Naiara Barros; Alvarenga, Willyane de Andrade; Leite, Ana Carolina Andrade Biaggi; Araújo, Jeferson Santos; Dos Santos, Paes Abreu; Zago, Márcia Maria Fontão; Montigny, Francine de; Nascimento, Lucila; Ciencias de la Salud; Osasun Zientziak
Objetivo: Sintetizar e interpretar resultados y conclusiones de investigaciones cualitativas sobre la experiencia del padre en el cuidado del hijo con cáncer. Método: Metasíntesis de 16 estudios cualitativos recogidos en seis bases de datos y examinados mediante análisis taxonómica. Resultados: El cáncer infantojuvenil repercute considerablemente en la vida cotidiana del padre, sobre todo con relación al estigma de la enfermedad, al miedo a lo desconocido y al papel social y familiar. Ante la enfermedad y la necesidad de cuidar del hijo, el padre busca rescatar la normalidad en la familia y transita entre comportamientos hegemónicamente masculinos y prácticas reconocidas culturalmente como femeninas. Consideraciones finales: Se puso en evidencia la compleja experiencia paterna influenciada por las masculinidades. Las limitaciones se refieren a la estricta comprensión de las especificidades contextuales de las experiencias por las escasas características de los padres e hijos descritos en los estudios. El conocimiento producido puede llegar a ser útil para promover el compromiso paterno en el cuidado del hijo, así como fortalecerlo y ayudarlo en esta tarea.
Open Access
'God gives me hope!': hospitalized children's perception of the influence of religion in coping with chronic illness
(Elsevier, 2024) Alvarenga, Willyane de Andrade; Cruz, Isabela Emanuela Cantanhêde da; Leite, Ana Carolina Andrade Biaggi; Nascimento, Lucila; Machado, Júlia Rezende; Santos, Louise Bittencourt Paes Abreu dos; Lima, Regina Aparecida Garcia de; Ciencias de la Salud; Osasun Zientziak
Purpose: The mechanism of the impact of religion on health is still unclear, especially in children and adolescents with chronic illness who live in religious contexts. This study aimed to understand the influence of religion on coping with chronic diseases from the perspective of hospitalized children and adolescents diagnosed with cancer, type 1 diabetes mellitus and cystic fibrosis. Design and methods: Qualitative descriptive research used photo-elicitation interviews with 35 Brazilian children and adolescents with cancer, type 1 diabetes mellitus and cystic fibrosis, aged between 7 and 17 years old. A thematic analysis approach was used to analyze qualitative data. Results: Participants were diagnosed with cystic fibrosis (14.3%), cancer (57.1%), and type 1 diabetes mellitus (28.6%) and 82.9% had a religious affiliation. Three themes were constructed: finding strength and support in the relationship with the divine, religion as an important source of meaning, and religious practice as a promoter of well-being. These themes demonstrate that children and adolescents themselves perceived their illness as a journey through which their faith grew. Conclusions: This research shows the influence of religion on the positive coping of chronic illness, being a source of strength and support from the relationship with the divine, as well as offering a source of meaning, purpose and well-being based on religious practices. Practice implications: This study supports clinical practice, based on the recognition of the patient as a religious and spiritualized person who has spiritual beliefs and needs that are capable of influencing treatment.
Open Access
Metasíntesis sobre el hombre como padre y cuidador de un hijo hospitalizado
(Universidad de São Paulo, 2017) Dos Reis, Susana Maria Garcia; Leite, Ana Carolina Andrade Biaggi; Alvarenga, Willyane de Andrade; Araújo, Jeferson Santos; Zago, Márcia Maria Fontão; Nascimento, Lucila; Ciencias de la Salud; Osasun Zientziak
Objetivo: identificar, analizar y sintetizar los resultados de estudios cualitativos primarios que discuten la experiencia del padre en el cuidado al hijo hospitalizado. Método: se trata de metasíntesis cualitativa por medio de la cual fueron analizados 12 artículos, seleccionados en las bases de datos Cumulative Index to Nursing and Allied Health Literature, Literatura Latinoamericana y del Caribe en Ciencias de la Salud, Public Medline, Scopus, PsycINFO y Web of Science, publicados entre 1995 y 2015. Las etapas metodológicas propuestas por Sandelowski y Barroso se utilizaron para sistematizar la revisión, así como conceptos de la antropología de las masculinidades, para análisis y discusión de la síntesis. Resultados: la síntesis fue presentada por dos temas: 1) dilemas paternos - lo que el hombre siente y enfrenta durante la hospitalización del hijo, destacando el involucramiento emocional y cambio en la relación familiar y laboral, y 2) identidades paternas - masculinidades reajustadas ante el adolecer del hijo, que revela marcas identitarias y la paternidad reprimida, en el ambiente hospitalario. Ambos temas ilustran los retos y el reajuste de la identidad paterna. Consideraciones finales: conocer las vivencias del padre durante la hospitalización del hijo y la manera como los desafíos para el reajuste de papeles relativos a la masculinidad puede ampliar el alcance de la enfermería, y de los demás profesionales de salud, alertando sobre la importancia de incluir al padre como protagonista o coadyuvante en el cuidado del niño hospitalizado.
Open Access
The experience of hope in families of children and adolescents living with chronic illness: a thematic synthesis of qualitative studies
(Wiley, 2019-11-25) Leite, Ana Carolina Andrade Biaggi; García Vivar, Cristina; Neris, Rhyquelle Rhibna; Alvarenga, Willyane de Andrade; Nascimento, Lucila; Ciencias de la Salud; Osasun Zientziak; Institute of Smart Cities - ISC
Aim To synthesize qualitative studies on the experience of hope in families of children and adolescents living with chronic illness. Background Hope is multidimensional, dynamic, and varies according to experienced events, cultural environments and stage of life. The qualitative synthesis of the experience of hope in the paediatric population with chronic conditions is scarce. Design Thematic synthesis of qualitative studies. Data sources A systematic literature search in PubMed, CINAHL, LILACS, PsycINFO, Scopus, and Web of Science was performed supplemented by manual search strategies. Thirty-one studies from fifteen countries, published between 1981-2018, were included. Findings Findings were integrated into an analytical theme "FAMILY HOPE: KEEPING THE DAY-TO-DAY BALANCE", encompassing the following five descriptive themes: Uncertainty; Support; Information; Between "dark thoughts" and positive thoughts; and Hoping to go back to normality. Conclusion This thematic synthesis brings a new dimension of hope among families of children and adolescents living with chronic illness. "Family Hope" highlights the influence of the relationships between relatives and the chronically ill child in the balance of hope. It is recommended that health professionals use a family-focused approach to support these families. Impact Shifting the focus to a family dimension of hope is a promising pursuit that has the potential to inform future nursing practices to support the experiences of families living with chronic illness in the paediatric context. A better understanding of the role and characteristics of family hope will promote the development of more effective interventions for families to adapt to long-term paediatric conditions.
Open Access
School reintegration from the perspective of children and adolescents with chronic illnesses
(Universidade Estadual de Maringá, 2023-12-08) Leite, Ana Carolina Andrade Biaggi; Sabatini, Arielly Fernanda Bávaro; Alvarenga, Willyane de Andrade; Neris, Rhyquelle Rhibna; Nunes, Michelle Darezzo Rodrigues; Lucca, Milena de; Nascimento, Lucila; Ciencias de la Salud; Osasun Zientziak
Objetivo: analizar la experiencia de niños y adolescentes con enfermedades crónicas en el proceso de reinserción escolar. Método: estudio cualitativo, de naturaleza descriptiva-exploratoria, conducido en una enfermería pediátrica de un hospital público del interior paulista, con 15 niños y adolescentes con enfermedades crónicas, que interrumpieron la frecuencia escolar por demandas asociadas a la terapéutica de la enfermedad. Fueron conducidas entrevistas semiestructuradas y los datos sometidos a los procedimientos del análisis temático inductivo. El estudio siguió todos los preceptos éticos (dictamen nº. 2.911.290). Resultados: con base en los análisis fueron construidos cuatro temas: (1) "Impacto social, académico y emocional de la hospitalización"; (2) "Rutina en el hospital: estrategias para recuperar el rendimiento escolar"; (3) "Desafíos y alegrías consecuentes al retorno a la escuela"; y (4) "Redes de apoyo al niño y al adolescente con enfermedad crónica en el proceso de reinserción escolar". Conclusión: niños y adolescentes con enfermedades crónicas que experimentan la reinserción escolar necesitan apoyo en este proceso, principalmente para mantener la conexión con la escuela durante el alejamiento y en la fase de reinserción. Los resultados de esta investigación pueden ayudar a los profesionales de salud en la planificación del cuidado, considerando las necesidades académicas de esa población.
Open Access
The experience of health-related quality of life in extended and permanent cancer survivors: a qualitative systematic review
(Wiley, 2020-07-13) Neris, Rhyquelle Rhibna; Nascimento, Lucila; Leite, Ana Carolina Andrade Biaggi; Alvarenga, Willyane de Andrade; Polita, Naiara Barros; Zago, Márcia Maria Fontão; Ciencias de la Salud; Osasun Zientziak
Objective: This qualitative systematic review aims to synthesize qualitative evidencefrom primary studies on experiencing health-related quality of life (HRQoL) inextended and permanent cancer survivors.Methods: A systematic literature search was performed in PubMed, CINAHL,LILACS, PsycINFO, Scopus, and Web of Science. It followed guidelines from thestatement in the Enhancing Transparency in Reporting the Synthesis of QualitativeResearch (ENTREQ). A quality appraisal of each study was undertaken using the Critical Appraisal Skills Programme. Data synthesis was conducted according to the the-matic synthesis approach. Confidence in each review finding was assessed using theConfidence in the Evidence from Reviews of Qualitative research (Grade-CERQual).Results: Twenty-four studies from nine countries were selected for the final sample.Analysis of the studies' results allowed for the construction of nine descriptivethemes that were interpreted into three analytical themes: "The body as a represen-tation of HRQoL," "Living through and beyond cancer: the re-signification ofHRQoL," and "Employing resources to improve HRQoL." According to the CERQualapproach, moderate confidence estimations were achieved for the results.Conclusions: The themes reflect that the HRQoL experience is re-signified by survivors from the privilege of being alive. This process happens with the support of socialresources, family, hope, and spirituality. Based on the findings, it is suggested thathealth staff should be able to recognize the impact that cancer survival has onHRQoL and develop a care plan that addresses needs to sustain health in these survivors.