Person: Leite, Ana Carolina Andrade Biaggi
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Leite
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Ana Carolina Andrade Biaggi
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Ciencias de la Salud
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0000-0003-0262-0441
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812877
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Publication Open Access Metasíntesis sobre el hombre como padre y cuidador de un hijo hospitalizado(Universidad de São Paulo, 2017) Dos Reis, Susana Maria Garcia; Leite, Ana Carolina Andrade Biaggi; Alvarenga, Willyane de Andrade; Araújo, Jeferson Santos; Zago, Márcia Maria Fontão; Nascimento, Lucila; Ciencias de la Salud; Osasun ZientziakObjetivo: identificar, analizar y sintetizar los resultados de estudios cualitativos primarios que discuten la experiencia del padre en el cuidado al hijo hospitalizado. Método: se trata de metasíntesis cualitativa por medio de la cual fueron analizados 12 artículos, seleccionados en las bases de datos Cumulative Index to Nursing and Allied Health Literature, Literatura Latinoamericana y del Caribe en Ciencias de la Salud, Public Medline, Scopus, PsycINFO y Web of Science, publicados entre 1995 y 2015. Las etapas metodológicas propuestas por Sandelowski y Barroso se utilizaron para sistematizar la revisión, así como conceptos de la antropología de las masculinidades, para análisis y discusión de la síntesis. Resultados: la síntesis fue presentada por dos temas: 1) dilemas paternos - lo que el hombre siente y enfrenta durante la hospitalización del hijo, destacando el involucramiento emocional y cambio en la relación familiar y laboral, y 2) identidades paternas - masculinidades reajustadas ante el adolecer del hijo, que revela marcas identitarias y la paternidad reprimida, en el ambiente hospitalario. Ambos temas ilustran los retos y el reajuste de la identidad paterna. Consideraciones finales: conocer las vivencias del padre durante la hospitalización del hijo y la manera como los desafíos para el reajuste de papeles relativos a la masculinidad puede ampliar el alcance de la enfermería, y de los demás profesionales de salud, alertando sobre la importancia de incluir al padre como protagonista o coadyuvante en el cuidado del niño hospitalizado.Publication Open Access Care provided by the father to the child with cancer under the influence of masculinities: qualitative meta-synthesis(Associação Brasileira de Enfermagem, 2018) Polita, Naiara Barros; Alvarenga, Willyane de Andrade; Leite, Ana Carolina Andrade Biaggi; Araújo, Jeferson Santos; Dos Santos, Paes Abreu; Zago, Márcia Maria Fontão; Montigny, Francine de; Nascimento, Lucila; Ciencias de la Salud; Osasun ZientziakObjetivo: Sintetizar e interpretar resultados y conclusiones de investigaciones cualitativas sobre la experiencia del padre en el cuidado del hijo con cáncer. Método: Metasíntesis de 16 estudios cualitativos recogidos en seis bases de datos y examinados mediante análisis taxonómica. Resultados: El cáncer infantojuvenil repercute considerablemente en la vida cotidiana del padre, sobre todo con relación al estigma de la enfermedad, al miedo a lo desconocido y al papel social y familiar. Ante la enfermedad y la necesidad de cuidar del hijo, el padre busca rescatar la normalidad en la familia y transita entre comportamientos hegemónicamente masculinos y prácticas reconocidas culturalmente como femeninas. Consideraciones finales: Se puso en evidencia la compleja experiencia paterna influenciada por las masculinidades. Las limitaciones se refieren a la estricta comprensión de las especificidades contextuales de las experiencias por las escasas características de los padres e hijos descritos en los estudios. El conocimiento producido puede llegar a ser útil para promover el compromiso paterno en el cuidado del hijo, así como fortalecerlo y ayudarlo en esta tarea.Publication Embargo Compassion fatigue: a comprehensive discussion on its development and repercussions among oncology nurses(Grune & Stratton, 2024) Santos, Louise Bittecourt Paes Abreu dos; Alvarenga, Willyane de Andrade; Leite, Ana Carolina Andrade Biaggi; Neris, Rhyquelle Rhibna; Lima, Regina Aparecida Garcia de; Montigny, Francine de; Verdon, Chantal; Nascimento, Lucila; Ciencias de la Salud; Osasun ZientziakObjectives: This study aimed to discuss how compassion fatigue (CF) develops and its repercussions on the personal and professional lives of oncology nurses. Methods: A discursive article, with systematic searches were performed in seven databases to find publications on CF in oncology nurses. Results: So as to better organize the findings, three categories were developed to present and discuss issues related to CF: (1) Characteristics of CF and its developments: describes the components related to CF and the manifestation of this phenomenon; (2) Repercussions of compassion fatigue: reports on the impact of CF on the personal and professional life of oncology nurses; and (3) Resources for dealing with compassion fatigue: lists interventions, sources of support, professional personal training, qualified nursing care in the face of adversity, and gratitude and recognition. Conclusion: the factors that trigger or protect CF are multifactorial, with the need for collective and individual interventions as a way of helping oncology nurses to protect themselves, to avoid or manage this phenomenon. CF has a direct clinical impact on the life of the oncology nurse, causing several changes. It also indirectly impacts the patient's life clinically, as it is a phenomenon that has repercussions on the provision of care. Implications for Nursing Practice: CF affects the personal and professional lives of oncology nurses, so nurses need to seek resources to deal with it. Nursing staff employers and managers can use the evidence from this research to help nurses manage and protect themselves from compassion fatigue.Publication Embargo 'God gives me hope!': hospitalized children's perception of the influence of religion in coping with chronic illness(Elsevier, 2024) Alvarenga, Willyane de Andrade; da Cruz, Isabela Emanuela Cantanhêde; Leite, Ana Carolina Andrade Biaggi; Nascimento, Lucila; Machado, Júlia Rezende; Santos, Louise Bittencourt Paes Abreu dos; Lima, Regina Aparecida Garcia de; Ciencias de la Salud; Osasun ZientziakPurpose: The mechanism of the impact of religion on health is still unclear, especially in children and adolescents with chronic illness who live in religious contexts. This study aimed to understand the influence of religion on coping with chronic diseases from the perspective of hospitalized children and adolescents diagnosed with cancer, type 1 diabetes mellitus and cystic fibrosis. Design and methods: Qualitative descriptive research used photo-elicitation interviews with 35 Brazilian children and adolescents with cancer, type 1 diabetes mellitus and cystic fibrosis, aged between 7 and 17 years old. A thematic analysis approach was used to analyze qualitative data. Results: Participants were diagnosed with cystic fibrosis (14.3%), cancer (57.1%), and type 1 diabetes mellitus (28.6%) and 82.9% had a religious affiliation. Three themes were constructed: finding strength and support in the relationship with the divine, religion as an important source of meaning, and religious practice as a promoter of well-being. These themes demonstrate that children and adolescents themselves perceived their illness as a journey through which their faith grew. Conclusions: This research shows the influence of religion on the positive coping of chronic illness, being a source of strength and support from the relationship with the divine, as well as offering a source of meaning, purpose and well-being based on religious practices. Practice implications: This study supports clinical practice, based on the recognition of the patient as a religious and spiritualized person who has spiritual beliefs and needs that are capable of influencing treatment.Publication Open Access Navigating the challenges and resilience in the aftermath of the Covid-19 pandemic in adolescents with chronic diseases: a scoping review(MDPI, 2024-08-27) Machado Kayzuka, Giovanna Cristina; Seccarecio, Isabela Helena; Lucca, Milena de; Neris, Rhyquelle Rhibna; Leite, Ana Carolina Andrade Biaggi; Alvarenga, Willyane de Andrade; Bortoli, Paula Saud de; Pinto, Manoela Henriques; Nascimento, Lucila; Ciencias de la Salud; Osasun ZientziakBackground/Objectives: The COVID-19 pandemic has profoundly affected the lives of adolescents worldwide, especially those living with chronic diseases. This study aims to explore the impact of the COVID-19 pandemic on the daily lives of adolescents with chronic diseases. Methods: This is a scoping review that follows the guidelines proposed by JBI. Eligibility criteria include articles focusing on adolescents aged 10 to 19 during the COVID-19 pandemic, regardless of chronic diseases. Searches were performed in PUBMED, LILACS, CINAHL, SCOPUS, grey literature, and manual searches in March 2024. Results: This review is composed of 35 articles. The analysis revealed two main categories: (1) Adolescents facing social isolation, school closure, and new family interactions, striving to reinvent themselves, and (2) Chasing the best decision: following up the chronic disease while fighting the COVID-19 pandemic. These categories encompass subcategories highlighting changes in social and family interactions and lifestyle habits. The findings suggest a multifaceted interaction of factors influencing adolescents¿ well-being, including improved family bonding, heightened disease management, and increased stress and strains on resources. Conclusions: This review emphasizes the importance of long-term follow-up and social inclusion efforts for adolescents with chronic diseases and their families, addressing their unique needs during public health crises.Publication Open Access Systematic review of the psychometric properties of instruments to measure sexual desire(BioMed Central, 2018-11-18) Cartagena-Ramos, Denisse; Fuentealba-Torres, Miguel; Rebustini, Flávio; Leite, Ana Carolina Andrade Biaggi; Alvarenga, Willyane de Andrade; Arcêncio, Ricardo Alexandre; Dantas, Rosana Aparecida Spadoti; Nascimento, Lucila; Ciencias de la Salud; Osasun ZientziakBackground: Sexual desire is one of the domains of sexual function with multiple dimensions, which commonly affects men and women around the world. Classically, its assessment has been applied through self-report tools; however, an issue is related to the evidence level of these questionnaires and their validity. Therefore, a systematic review addressing the available questionnaires is really relevant, since it will be able to show their psychometric properties and evidence levels. Method: A systematic review was carried out in the PubMed, EMBASE, PsycINFO, Science Direct, and Web of Science databases. The search strategy was developed according to the following research question and combination of descriptors and keywords, including original studies with no limit of publication date and in Portuguese, English, and Spanish. Two reviewers carried out the selection of articles by abstracts and full texts as well as the analysis of the studies independently. The methodological quality of the instruments was evaluated by the COnsensus-based Standards for the selection of health status Measurement INstruments (COSMIN) checklist. Results: The search resulted in 1203 articles, of which 15 were included in the review. It identified 10 instruments originally developed in the English language. Unsatisfactory results on methodological quality were evidenced in cultural adaptation studies with no description of the steps of the processes and inadequacy of techniques and parameters of adequacy for models. The Principal Component Analysis with Varimax rotation predominated in the studies. Conclusions: The limitation of the techniques applied in the validation process of the reviewed instruments was evident. A limitation was observed in the number of adaptations conducted and contexts to which the instruments were applied, making it impossible to reach a better understanding of the functioning of instruments. In future studies, the use of robust techniques can ensure the quality of the psychometric properties and the accuracy and stability of instruments. A detailed description of procedures and results in validation studies may facilitate the selection and use of instruments in the academic and/or clinical settings. Systematic review registration: PROSPERO CRD42018085706.Publication Open Access School reintegration from the perspective of children and adolescents with chronic illnesses(Universidade Estadual de Maringá, 2023-12-08) Leite, Ana Carolina Andrade Biaggi; Sabatini, Arielly Fernanda Bávaro; Alvarenga, Willyane de Andrade; Neris, Rhyquelle Rhibna; Nunes, Michelle Darezzo Rodrigues; Lucca, Milena de; Nascimento, Lucila; Ciencias de la Salud; Osasun ZientziakObjetivo: analizar la experiencia de niños y adolescentes con enfermedades crónicas en el proceso de reinserción escolar. Método: estudio cualitativo, de naturaleza descriptiva-exploratoria, conducido en una enfermería pediátrica de un hospital público del interior paulista, con 15 niños y adolescentes con enfermedades crónicas, que interrumpieron la frecuencia escolar por demandas asociadas a la terapéutica de la enfermedad. Fueron conducidas entrevistas semiestructuradas y los datos sometidos a los procedimientos del análisis temático inductivo. El estudio siguió todos los preceptos éticos (dictamen nº. 2.911.290). Resultados: con base en los análisis fueron construidos cuatro temas: (1) "Impacto social, académico y emocional de la hospitalización"; (2) "Rutina en el hospital: estrategias para recuperar el rendimiento escolar"; (3) "Desafíos y alegrías consecuentes al retorno a la escuela"; y (4) "Redes de apoyo al niño y al adolescente con enfermedad crónica en el proceso de reinserción escolar". Conclusión: niños y adolescentes con enfermedades crónicas que experimentan la reinserción escolar necesitan apoyo en este proceso, principalmente para mantener la conexión con la escuela durante el alejamiento y en la fase de reinserción. Los resultados de esta investigación pueden ayudar a los profesionales de salud en la planificación del cuidado, considerando las necesidades académicas de esa población.Publication Open Access Translation and cultural adaptation of the Needs of Parents Questionnaire (NPQ) to be used in Brazil(Universidade Federal do Rio de Janeiro, 2018) Andrade, Rosyan Carvalho; Leite, Ana Carolina Andrade Biaggi; Alvarenga, Willyane de Andrade; Martimiano, Rafael Rozeta; Dos Santos, Claudia Benedita; Nascimento, Lucila; Ciencias de la Salud; Osasun ZientziakObjetivo: Realizar traducción, adaptación cultural y evaluación de la consistencia interna de la versión adaptada del Needs of Parents Questionnaire (NPQ) en muestras con padres de niños hospitalizados en Brasil. Método: Estudio metodológico, fundamentado esencialmente en el método DISABKIDS®, desarrollado en hospital público universitario. Fueron realizadas etapas de traducción, evaluación por un comité de expertos, retrotraducción, validación semántica y estudio piloto. Resultados: Después del proceso de traducción y retrotraducción del instrumento original para el portugués, se produjo la validación semántica con 30 padres, realizándose adecuaciones hasta que la versión traducida fuera considerada comprensible por la mayoría. Después, fue realizado el estudio piloto con otros 59 padres, presentando valores satisfactorios de la consistencia interna. Conclusiones: El NPQ adaptado se demostró confiable y, después de la evaluación de propiedades psicométricas en el estudio de campo, podrá ser útil para evaluar las necesidades de padres de niños hospitalizados, cualificando el cuidado de enfermería.