Leite, Ana Carolina Andrade Biaggi
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Leite
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Ana Carolina Andrade Biaggi
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Ciencias de la Salud
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Publication Open Access Pain, sleep patterns and health-related quality of life in paediatric patients with cancer(Wiley, 2019-03-03) Nunes, Michelle Darezzo Rodrigues; Nascimento, Lucila; Fernandes, Ananda Maria; Batalha, Luis; Campos, Catarina de; Gonçalves, Ana; Leite, Ana Carolina Andrade Biaggi; Alvarenga, Willyane de Andrade; Lima, Regina Aparecida Garcia de; Jacob, Eufemia; Ciencias de la Salud; Osasun ZientziakPurpose: To compare sleep and health-related quality of life (HRQOL) in children and adolescents with cancer who had pain, with those who had no pain during hospitalization. Method: A prospective comparative study was used to collect data from pediatric oncology units in three countries (Portugal, Brazil, USA). Participants (n=118; 8 to 18 years) completed the Quality of Life Inventory (PedsQL) Cancer module, which includes a pain subscale, and wore a wrist actigraph for at least 72 hours. Results: Almost half of the participants (48,3%) reported having pain. Sleep patterns were not affected by pain. Girls, adolescents and patients diagnosed with leukemia/lymphoma who reported pain, had significantly lower HRQOL scores. Low sleep duration and HRQOL were found, irrespectively of pain status. Conclusions: The low sleep duration and HRQOL score in children and adolescents with cancer highlight the importance of physical and psychosocial nursing interventions during hospitalization. The mediating effect of gender, age and diagnoses on the relation between pain and HRQOL needs to be further understood.Publication Open Access Measuring spiritual well-being in Brazilian adolescents with chronic illness using the FACIT-Sp-12: age adaptation of the self-report version, development of the parental-report version, and validation. journal of religion and health(Springer, 2019-08-24) Alvarenga, Willyane de Andrade; Nascimento, Lucila; Dos Santos, Claudia Benedita; Leite, Ana Carolina Andrade Biaggi; Mühlan, Holger; Schmidt, Silke; Bullinger, Monika; Carvalho, Emilia Campos de; Bredle, Jason; Arnold, Benjamin; Coelho, Robson de Castro; Vieira, Margarida; Ciencias de la Salud; Osasun ZientziakSpiritual well-being is a major issue in health care, but instruments for measuring this construct in adolescents are lacking. This study adapted the 12-item Functional Assessment of Chronic Illness Therapy-Spiritual Well-being Scale (FACIT-Sp-12) for use with Brazilian adolescents with chronic diseases and developed a parental observer-rated version, using an expert panel, back-translation, and cognitive interviews with 72 participants. The psychometric properties of both versions were verified with two- and three-factor models by testing with 212 participants. The self- and parental-reported versions showed face validity, content validity, and acceptable levels of internal consistency for the overall scale and the two-factor model. The convergent validity was satisfactory for most items in both two- and three-factor models, but there was a lack of discrimination in the three-factor model using multitrait-multimethod analysis. This study presents the first instrument to assess the spiritual well-being of adolescents from their point of view and to allow their parents to serve as evaluators. However, we recommend further psychometric testing of the self- and parental-report scales to assess spiritual well-being in adolescents with chronic diseases in Brazil.