Artículos de revista DTS - GLS Aldizkari artikuluak
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Publication Open Access La exclusión social, una problemática estructural entre las personas con discapacidad(Universidad de Murcia: Servicio de Publicaciones, 2017) Anaut Bravo, Sagrario; Arza Porras, Javier; Álvarez Urricelqui, María Jesús; Trabajo Social; Gizarte Lana; Psicología y Pedagogía; Psikologia eta PedagogiaEl presente artículo centra su mirada en la persistencia de las situaciones de exclusión social de las personas con discapacidad y sus hogares. El énfasis se pone en las limitaciones de las políticas sociales aplicadas hasta la fecha para romper el carácter estructural de la exclusión en España. En las últimas décadas se han centrado los esfuerzos en la integración a través de una cierta garantía de ingresos mínimos y en el ámbito laboral. Siendo ámbitos centrales para la inclusión, en este documento se quiere focalizar la reflexión en otras cuestiones de relevancia como la salud, educación, servicios sociales y participación social. Cualquier medida o actuación tomada en estos campos se plantea en el medio y largo plazo, por lo que los cambios no resultan siempre perceptibles ni fácilmente medibles. Por tanto, el posicionamiento de las siguientes páginas insiste en que la discapacidad es una cuestión de Derechos Humanos.Publication Open Access Implementation of a multidisciplinary psychoeducational intervention for Parkinson’s disease patients and carers in the community: study protocol(BioMed Central, 2018) Navarta Sánchez, María Victoria; Ursúa Sesma, M. E.; Riverol Fernández, M.; Álvarez Urricelqui, María Jesús; Anaut Bravo, Sagrario; Trabajo Social; Gizarte LanaBackground: Parkinson’s disease progressively limits patients at different levels and as a result family members play a key role in their care. However, studies show lack of an integrative approach in Primary Care to respond to the difficulties and psychosocial changes experienced by them. The aim of this study is to evaluate the effects of a multidisciplinary psychoeducational intervention focusing on improving coping skills, the psychosocial adjustment to Parkinson’s disease and the quality of life in patients and family carers in a Primary Care setting. Methods: This quasi-experimental study with control group and mixed methods was designed to evaluate a multidisciplinary psychoeducational intervention. Based on the study power calculations, 100 people with Parkinson’s disease and 100 family carers will be recruited and assigned to two groups. The intervention group will receive the ReNACE psychoeducational intervention. The control group will be given a general educational programme. The study will be carried out in six community-based health centres. The results obtained from the two groups will be collected for evaluation at three time points: at baseline, immediately after the intervention and at 6 months post-intervention. The results will be measured with these instruments: the Quality of Life Scale PDQ-39 for patients and the Scale of Quality of Life of Care-givers SQLC for family carers, and for all participants the Psychosocial Adjustment to Illness scale and the Brief COPE Inventory. Focus groups will be organised with some patients and family carers who will have received the ReNACE psychoeducational intervention and also with the healthcare professionals involved in its development. Discussion: An important gap exists in the knowledge and application of interventions with a psychosocial approach for people with PD and family carers as a whole. This study will promote this comprehensive approach in Primary Care, which will clearly contribute in the existing knowledge and could reduce the burden of PD for patients and family carers, and also in other long-term conditions.