Open Access
Implementation of a multidisciplinary psychoeducational intervention for Parkinson’s disease patients and carers in the community: study protocol
(BioMed Central, 2018) Navarta Sánchez, María Victoria; Ursúa Sesma, M. E.; Riverol Fernández, M.; Álvarez Urricelqui, María Jesús; Anaut Bravo, Sagrario; Trabajo Social; Gizarte Lana
Background: Parkinson’s disease progressively limits patients at different levels and as a result family members play a key role in their care. However, studies show lack of an integrative approach in Primary Care to respond to the difficulties and psychosocial changes experienced by them. The aim of this study is to evaluate the effects of a multidisciplinary psychoeducational intervention focusing on improving coping skills, the psychosocial adjustment to Parkinson’s disease and the quality of life in patients and family carers in a Primary Care setting. Methods: This quasi-experimental study with control group and mixed methods was designed to evaluate a multidisciplinary psychoeducational intervention. Based on the study power calculations, 100 people with Parkinson’s disease and 100 family carers will be recruited and assigned to two groups. The intervention group will receive the ReNACE psychoeducational intervention. The control group will be given a general educational programme. The study will be carried out in six community-based health centres. The results obtained from the two groups will be collected for evaluation at three time points: at baseline, immediately after the intervention and at 6 months post-intervention. The results will be measured with these instruments: the Quality of Life Scale PDQ-39 for patients and the Scale of Quality of Life of Care-givers SQLC for family carers, and for all participants the Psychosocial Adjustment to Illness scale and the Brief COPE Inventory. Focus groups will be organised with some patients and family carers who will have received the ReNACE psychoeducational intervention and also with the healthcare professionals involved in its development. Discussion: An important gap exists in the knowledge and application of interventions with a psychosocial approach for people with PD and family carers as a whole. This study will promote this comprehensive approach in Primary Care, which will clearly contribute in the existing knowledge and could reduce the burden of PD for patients and family carers, and also in other long-term conditions.
Open Access
El impacto del entorno residencial en la adaptación psicosocial y calidad de vida de personas cuidadoras de familiares con demencia
(Universidad de Alicante, 2020) Anaut Bravo, Sagrario; Lopes Dos Santos, María Cristina; Sociología y Trabajo Social; Soziologia eta Gizarte Lana
La evolución sociodemográfica y su incidencia en los cuidados de larga duración en patologías emergentes como la demencia demandan respuestas desde los diferentes sistemas de protección social. La presente investigación se ha centrado en determinar los impactos derivados del lugar de residencia en la adaptación psicosocial y calidad de vida de familiares cuidadores de personas con demencia. Los resultados confirman diferencias entre entornos urbanos y rurales-semirurales, aunque haya, como dato general, una buena calidad de vida y adaptación de las personas cuidadoras de familiares con demencia. Todo apunta a la necesidad de promover intervenciones sociosanitarias alineadas con los espacios contextuales.
Open Access
Factors influencing psychosocial adjustment and quality of life in Parkinson patients and informal caregivers
(Springer, 2016) Navarta Sánchez, María Victoria; Senosiain García, J. M.; Riverol Fernández, M.; Ursúa Sesma, M. E.; Anaut Bravo, Sagrario; Trabajo Social; Gizarte Lana
Objective: The influence that social conditions and personal attitudes may have on the quality of life (QoL) of Parkinson’s disease (PD) patients and informal caregivers does not receive enough attention in health care, as a result of it not being clearly identified, especially in informal caregivers. The aim of this study was to provide a comprehensive analysis of psychosocial adjustment and QoL determinants in PD patients and informal caregivers. Methods: Ninety-one PD patients and 83 caregivers participated in the study. Multiple regression analyses were performed including benefit finding, coping, disease severity and socio-demographic factors, in order to determine how these aspects influence the psychosocial adjustment and QoL in PD patients and caregivers. Results: Regression models showed that severity of PD was the main predictor of psychosocial adjustment and QoL in patients. Nevertheless, multiple regression analyses also revealed that coping was a significant predictor of psychosocial adjustment in patients and caregivers. Furthermore, psychosocial adjustment was significantly related to QoL in patients and caregivers. Also, coping and benefit finding were predictors of QoL in caregivers but not in patients. Conclusions: Multidisciplinary interventions aimed at improving PD patients’ QoL may have more effective outcomes if education about coping skills, and how these can help towards a positive psychosocial adjustment to illness, were included, and targeted not only at patients, but also at informal caregivers.

Anaut Bravo, Sagrario

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