Measuring spiritual well-being in Brazilian adolescents with chronic illness using the FACIT-Sp-12: age adaptation of the self-report version, development of the parental-report version, and validation. journal of religion and health

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dc.contributor.authorAlvarenga, Willyane de Andrade
dc.contributor.authorNascimento, Lucila
dc.contributor.authorDos Santos, Claudia Benedita
dc.contributor.authorLeite, Ana Carolina Andrade Biaggi
dc.contributor.authorMühlan, Holger
dc.contributor.authorSchmidt, Silke
dc.contributor.authorBullinger, Monika
dc.contributor.authorCarvalho, Emilia Campos de
dc.contributor.authorBredle, Jason
dc.contributor.authorArnold, Benjamin
dc.contributor.authorCoelho, Robson de Castro
dc.contributor.authorVieira, Margarida
dc.contributor.departmentCiencias de la Saludes_ES
dc.contributor.departmentOsasun Zientziakeu
dc.date.accessioned2025-01-14T09:19:56Z
dc.date.available2025-01-14T09:19:56Z
dc.date.issued2019-08-24
dc.date.updated2025-01-14T09:13:34Z
dc.description.abstractSpiritual well-being is a major issue in health care, but instruments for measuring this construct in adolescents are lacking. This study adapted the 12-item Functional Assessment of Chronic Illness Therapy-Spiritual Well-being Scale (FACIT-Sp-12) for use with Brazilian adolescents with chronic diseases and developed a parental observer-rated version, using an expert panel, back-translation, and cognitive interviews with 72 participants. The psychometric properties of both versions were verified with two- and three-factor models by testing with 212 participants. The self- and parental-reported versions showed face validity, content validity, and acceptable levels of internal consistency for the overall scale and the two-factor model. The convergent validity was satisfactory for most items in both two- and three-factor models, but there was a lack of discrimination in the three-factor model using multitrait-multimethod analysis. This study presents the first instrument to assess the spiritual well-being of adolescents from their point of view and to allow their parents to serve as evaluators. However, we recommend further psychometric testing of the self- and parental-report scales to assess spiritual well-being in adolescents with chronic diseases in Brazil.en
dc.description.sponsorshipThe authors acknowledge the funding received from the Coordination for the Improvement of Higher Education Personnel (CAPES) to frst author, as a PhD's Scholarship (# PDSE 99999.010691/2014- 06 and Finance Code 001).
dc.format.mimetypeapplication/pdfen
dc.identifier.citationDe Alvarenga, W. A., Nascimento, L. C., Dos Santos, C. B., Leite, A. C. A. B., Mühlan, H., Schmidt, S., Bullinger, M., de Carvalho, E. C., Bredle, J., Arnold, B., de Castro Coelho, R., Vieira, M. (2019). Measuring spiritual well-being in Brazilian adolescents with chronic illness using the FACIT-Sp-12: age adaptation of the self-report version, development of the parental-report version, and validation. journal of religion and health. Journal of Religion and Health, 58(6), 2219-2240. https://doi.org/10.1007/s10943-019-00901-y
dc.identifier.doi10.1007/s10943-019-00901-y
dc.identifier.issn0022-4197
dc.identifier.urihttps://academica-e.unavarra.es/handle/2454/52910
dc.language.isoeng
dc.publisherSpringer
dc.relation.ispartofJournal of Religion and Health (2019), vol. 58
dc.relation.publisherversionhttps://doi.org/10.1007/s10943-019-00901-y
dc.rights© Springer Science+Business Media, LLC, part of Springer Nature 2019
dc.rights.accessRightsinfo:eu-repo/semantics/openAccess
dc.subjectValidation studiesen
dc.subjectPsychometricsen
dc.subjectAdolescentsen
dc.subjectParentsen
dc.subjectProxyen
dc.subjectSpiritualityen
dc.subjectSpiritual well-beingen
dc.titleMeasuring spiritual well-being in Brazilian adolescents with chronic illness using the FACIT-Sp-12: age adaptation of the self-report version, development of the parental-report version, and validation. journal of religion and healthen
dc.typeinfo:eu-repo/semantics/article
dc.type.versioninfo:eu-repo/semantics/acceptedVersion
dspace.entity.typePublication
relation.isAuthorOfPublication90fe0c7a-2ad8-46ec-9bbf-b939a93ec431
relation.isAuthorOfPublication.latestForDiscovery90fe0c7a-2ad8-46ec-9bbf-b939a93ec431

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