Digital narratives: the impact of Instagram® on mothers of children with congenital toxoplasmosis

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dc.contributor.authorVeloso, Gabrielle Gonçalves
dc.contributor.authorMachado Kayzuka, Giovanna Cristina
dc.contributor.authorNeris, Rhyquelle Rhibna
dc.contributor.authorLeite, Ana Carolina Andrade Biaggi
dc.contributor.authorBarbosa, Nayara Gonçalves
dc.contributor.authorFigueiredo Frizzo, Heloísa Cristina
dc.contributor.authorVedoveto Escaliante, Gabrielle
dc.contributor.authorMoraes Leite, Adriana
dc.contributor.authorGomes Beato, Beatriz Volpin
dc.contributor.authorSantos, Poliane da Silva
dc.contributor.authorGomes-Sponholz, Flávia
dc.contributor.authorNascimento, Lucila
dc.contributor.departmentCiencias de la Saludes_ES
dc.contributor.departmentOsasun Zientziakeu
dc.date.accessioned2024-11-28T15:16:27Z
dc.date.available2024-11-28T15:16:27Z
dc.date.issued2024-10-19
dc.date.updated2024-11-28T14:43:02Z
dc.description.abstractBackground: Congenital toxoplasmosis leads to severe complications in childhood and presents significant global health challenges. In Brazil, the prevalence of toxoplasmosis during pregnancy and congenital cases ranges from 0.3 to 8 per 1000 live births. The clinical manifestations of congenital toxoplasmosis can include neurological and ocular damage, among other health issues, which place significant burdens on affected families. Objective: This study aims to investigate the experiences and motivations of mothers of children with congenital toxoplasmosis who share their journeys on social media, particularly Instagram. Methods: A qualitative virtual ethnography was used that explored the content shared by mothers of children diagnosed with congenital toxoplasmosis, aiming to understand how social media aids in their coping strategies and the support networks they create. Results: Fifteen Instagram accounts were analyzed, and twelve mothers participated in in-depth interviews. Thematic analysis revealed three main themes: the initial search for information and support, the evolving role of social media in advocacy and education, and the creation of a supportive online community. Conclusions: This study highlights the potential of social media to provide emotional support, disseminate information, and foster communities among mothers facing similar challenges, ultimately contributing to better care strategies and professional awareness for supporting families dealing with congenital toxoplasmosis.en
dc.description.sponsorshipResearch reported in this publication was supported by the Coordenação de Aperfeiçoamento de Pessoal de Nível Superior—Brazil (CAPES)—Finance Code 001, and the Conselho Nacional de Desenvolvimento Científico e Tecnológico (CNPq), Brazil, Process No. 2022-1393.
dc.format.mimetypeapplication/pdfen
dc.identifier.citationGoncalves Veloso, G., Machado-Kayzuka, G. C., Neris, R. R., Leite, A. C. A. B., Goncalves Barbosa, N., Figueiredo Frizzo, H. C., Vedoveto Escaliante, G., Morales Leite, A.,Volpin Gomes Beato, B., da Silva Santos, P., Gomes-Sponholz, F., Castanheira Nascimento, L. (2024) Digital Narratives: The impact of Instagram® on mothers of children with congenital toxoplasmosis. Children, 11(10), 1-13. https://doi.org/10.3390/children11101267.
dc.identifier.doi10.3390/children11101267
dc.identifier.issn2227-9067
dc.identifier.urihttps://academica-e.unavarra.es/handle/2454/52622
dc.language.isoeng
dc.publisherMDPI
dc.relation.ispartofChildren 2024, 11(10), 1267, 1-13
dc.relation.publisherversionhttps://doi.org/10.3390/children11101267
dc.rights© 2024 by the authors. Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license.
dc.rights.accessRightsinfo:eu-repo/semantics/openAccess
dc.rights.urihttps://creativecommons.org/licenses/by/4.0/
dc.subjectMaternal and child healthen
dc.subjectToxoplasmosisen
dc.subjectCongenitalen
dc.subjectChilden
dc.subjectExceptionalen
dc.subjectOnline social networkingen
dc.titleDigital narratives: the impact of Instagram® on mothers of children with congenital toxoplasmosisen
dc.typeinfo:eu-repo/semantics/article
dc.type.versioninfo:eu-repo/semantics/publishedVersion
dspace.entity.typePublication
relation.isAuthorOfPublication90fe0c7a-2ad8-46ec-9bbf-b939a93ec431
relation.isAuthorOfPublication.latestForDiscovery90fe0c7a-2ad8-46ec-9bbf-b939a93ec431

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