Open Access
The effect of music on the spirituality of patients: a systematic review
(SAGE, 2017-06-07) Alvarenga, Willyane de Andrade; Leite, Ana Carolina Andrade Biaggi; Oliveira, Marina Sanches; Nascimento, Lucila; Silva-Rodrigues, Fernanda Machado; Nunes, Michelle Darezzo Rodrigues; Carvalho, Emilia Campos de; Ciencias de la Salud; Osasun Zientziak
Purpose: Although some studies have suggested that music can positively affect physical and psychological variables, few have evaluated its effects on spirituality. This study aimed to evaluate the effects of musical interventions on the spirituality of patients, regardless of diagnoses. Method: This was a systematic literature review that followed the Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) recommendations conducted through a relevant search of terms in six databases (PubMed, Web of Science, CINAHL, PsycINFO, ScienceDirect, and LILACS) without temporal delimitation. Experimental or quasi-experimental studies were included, involving participants regardless of diagnoses, to assess the effect of music on spirituality, either through musical intervention as music medicine or through music therapy. The methodological quality of included studies was evaluated using the Physiotherapy Evidence Database scale. Results: A total of 147 studies were identified; 7 met the inclusion criteria. Five studies were randomized controlled trials involving six music therapists leading the musical intervention with the active participation of patients. The interventions used were heterogeneous. Three studies were associated with improved spirituality after the intervention. Four studies used measurements to evaluate spiritual well-being. Conclusion: This review did not allow ascertaining the positive impact of music intervention on spirituality in patients, which motivates further research.
Open Access
Peripherally inserted central catheter in pediatric oncology: a scoping review
(Universidade Federal de São Paulo, 2019-06-10) Bortoli, Paula Saud de; Leite, Ana Carolina Andrade Biaggi; Alvarenga, Willyane de Andrade; Alvarenga, Carolina Spinelli; Bessa, Caroline Rabaza; Nascimento, Lucila; Ciencias de la Salud; Osasun Zientziak
Objetivo: Conocer la producción científi ca sobre la utilización y mantenimiento del catéter central de inserción periférica (CCIP) en niños y adolescentes en tratamiento oncológico. Método: Revisión tipo Scoping Review, según el método adaptado y propuesto por Levac, Colquhoun y O¿Brien. Se realizaron cinco etapas: identifi cación del tema de investigación; búsquedas de estudios relevantes; selección de estudios; extracción de datos; agrupación, resumen y presentación de los resultados. Se utilizaron las bases de datos PubMed, CINAHL, Scopus, LILACS y Embase. Fueron incluidos artículos de revisión bibliográfi ca u originales, de enfoque cuantitativo o cualitativo, que se centraran en el catéter venoso central de inserción periférica en niños y adolescentes con cáncer, en cualquier etapa del tratamiento oncológico y cualquier contexto de cuidado, publicados en portugués, inglés y español, en el período de 2006 a 2017. Resultados: En las búsquedas en las bases de datos se encontraron 609 artículos únicos, de los cuales nueve formaron parte de la muestra fi nal. Fueron elaborados cinco temas principales relacionados a la utilización del catéter venoso central de inserción periférica: indicación, técnica de inserción, mantenimiento del catéter, complicaciones relacionadas y resultados de uso. Los resultados permiten sintetizar las recomendaciones para la utilización de este dispositivo respecto, sobre todo, a: uso terapéutico y tipo de neoplasia, elección de venas, tipos de vendaje, principales complicaciones y resultados. Conclusión: El catéter venoso central de inserción periférica muestra ser una opción segura y confi able para terapia endovenosa en la población pediátrica oncológica. El presente estudio ayuda a esclarecer la indicación de su utilización para tal población y señala temas que serán analizados en futuros estudios empíricos.
Open Access
'Opportunistic care': a focus group study of nurses' perspective on caring for long-term cancer survivors and their families
(Lippincott, Williams & Wilkins, 2024) Elizondo Rodríguez, Nerea; La Rosa-Salas, Virginia; Leite, Ana Carolina Andrade Biaggi; Domingo-Oslé, Marta; Nascimento, Lucila; García Vivar, Cristina; Ciencias de la Salud; Osasun Zientziak
Background: The global population of long-term cancer survivors is increasing, thanks to advances in treatments and care. Healthcare systems are working to address the unique needs of these individuals. However, there remains a knowledge gap concerning nurses' view on cancer survivorship care. Objective: To identify nurses' perspective of care for long-term cancer survivors and their families. Methods: This qualitative descriptive study used 5 focus groups comprising 33 nurses from primary healthcare and specialized oncology care. Data analysis was conducted through thematic analysis, and the study received ethical approval. Results: Long-term cancer survivors and their families often remained unrecognized as a distinct group within the healthcare system. Consequently, nurses provide what can be termed as opportunistic care during nurse-survivor encounters, addressing health needs beyond the purpose of the initial healthcare visit. This absence of a systematic or structured approach for this patient group has prompted nurses to seek the establishment of a comprehensive framework through survivorship care plans, thus ensuring a continuum of care for this specific population. Conclusion: The lack of a structured approach to caring for long-term cancer survivors and their families, often invisible as a distinct population group, results in nurses providing care on an opportunistic basis. Implications for practice: It is crucial to develop and implement survivorship care plans tailored to this population's needs. Simultaneously, it is important to advance research in this area and establish an educational framework for nurses, enabling them to effectively address the care of long-term cancer survivors and their families.
Open Access
The experience of hope in families of children and adolescents living with chronic illness: a thematic synthesis of qualitative studies
(Wiley, 2019-11-25) Leite, Ana Carolina Andrade Biaggi; García Vivar, Cristina; Neris, Rhyquelle Rhibna; Alvarenga, Willyane de Andrade; Nascimento, Lucila; Ciencias de la Salud; Osasun Zientziak; Institute of Smart Cities - ISC
Aim To synthesize qualitative studies on the experience of hope in families of children and adolescents living with chronic illness. Background Hope is multidimensional, dynamic, and varies according to experienced events, cultural environments and stage of life. The qualitative synthesis of the experience of hope in the paediatric population with chronic conditions is scarce. Design Thematic synthesis of qualitative studies. Data sources A systematic literature search in PubMed, CINAHL, LILACS, PsycINFO, Scopus, and Web of Science was performed supplemented by manual search strategies. Thirty-one studies from fifteen countries, published between 1981-2018, were included. Findings Findings were integrated into an analytical theme "FAMILY HOPE: KEEPING THE DAY-TO-DAY BALANCE", encompassing the following five descriptive themes: Uncertainty; Support; Information; Between "dark thoughts" and positive thoughts; and Hoping to go back to normality. Conclusion This thematic synthesis brings a new dimension of hope among families of children and adolescents living with chronic illness. "Family Hope" highlights the influence of the relationships between relatives and the chronically ill child in the balance of hope. It is recommended that health professionals use a family-focused approach to support these families. Impact Shifting the focus to a family dimension of hope is a promising pursuit that has the potential to inform future nursing practices to support the experiences of families living with chronic illness in the paediatric context. A better understanding of the role and characteristics of family hope will promote the development of more effective interventions for families to adapt to long-term paediatric conditions.
Open Access
Compassion fatigue: a comprehensive discussion on its development and repercussions among oncology nurses
(Grune & Stratton, 2024) Santos, Louise Bittencourt Paes Abreu dos; Alvarenga, Willyane de Andrade; Leite, Ana Carolina Andrade Biaggi; Neris, Rhyquelle Rhibna; Lima, Regina Aparecida Garcia de; Montigny, Francine de; Verdon, Chantal; Nascimento, Lucila; Ciencias de la Salud; Osasun Zientziak
Objectives: This study aimed to discuss how compassion fatigue (CF) develops and its repercussions on the personal and professional lives of oncology nurses. Methods: A discursive article, with systematic searches were performed in seven databases to find publications on CF in oncology nurses. Results: So as to better organize the findings, three categories were developed to present and discuss issues related to CF: (1) Characteristics of CF and its developments: describes the components related to CF and the manifestation of this phenomenon; (2) Repercussions of compassion fatigue: reports on the impact of CF on the personal and professional life of oncology nurses; and (3) Resources for dealing with compassion fatigue: lists interventions, sources of support, professional personal training, qualified nursing care in the face of adversity, and gratitude and recognition. Conclusion: the factors that trigger or protect CF are multifactorial, with the need for collective and individual interventions as a way of helping oncology nurses to protect themselves, to avoid or manage this phenomenon. CF has a direct clinical impact on the life of the oncology nurse, causing several changes. It also indirectly impacts the patient's life clinically, as it is a phenomenon that has repercussions on the provision of care. Implications for Nursing Practice: CF affects the personal and professional lives of oncology nurses, so nurses need to seek resources to deal with it. Nursing staff employers and managers can use the evidence from this research to help nurses manage and protect themselves from compassion fatigue.
Open Access
Care provided by the father to the child with cancer under the influence of masculinities: qualitative meta-synthesis
(Associação Brasileira de Enfermagem, 2018) Polita, Naiara Barros; Alvarenga, Willyane de Andrade; Leite, Ana Carolina Andrade Biaggi; Araújo, Jeferson Santos; Dos Santos, Paes Abreu; Zago, Márcia Maria Fontão; Montigny, Francine de; Nascimento, Lucila; Ciencias de la Salud; Osasun Zientziak
Objetivo: Sintetizar e interpretar resultados y conclusiones de investigaciones cualitativas sobre la experiencia del padre en el cuidado del hijo con cáncer. Método: Metasíntesis de 16 estudios cualitativos recogidos en seis bases de datos y examinados mediante análisis taxonómica. Resultados: El cáncer infantojuvenil repercute considerablemente en la vida cotidiana del padre, sobre todo con relación al estigma de la enfermedad, al miedo a lo desconocido y al papel social y familiar. Ante la enfermedad y la necesidad de cuidar del hijo, el padre busca rescatar la normalidad en la familia y transita entre comportamientos hegemónicamente masculinos y prácticas reconocidas culturalmente como femeninas. Consideraciones finales: Se puso en evidencia la compleja experiencia paterna influenciada por las masculinidades. Las limitaciones se refieren a la estricta comprensión de las especificidades contextuales de las experiencias por las escasas características de los padres e hijos descritos en los estudios. El conocimiento producido puede llegar a ser útil para promover el compromiso paterno en el cuidado del hijo, así como fortalecerlo y ayudarlo en esta tarea.
Open Access
The experience of coronaphobia among health professionals and their family members during COVID-19 pandemic: a qualitative study
(Elsevier, 2022) Barreto, Mayckel; Leite, Ana Carolina Andrade Biaggi; García Vivar, Cristina; Nascimento, Lucila; Marcon, Sonia; Ciencias de la Salud; Osasun Zientziak
Background: Coronaphobia is an excessive fear of becoming infected by the COVID-19 virus. Situations of coronaphobia against health professionals have been identified. Therefore, there is a need to develop studies to understand family impact and experience of COVID-19 pandemic and coronaphobia. Aim: To describe the coronaphobia experience of health professionals and of one of their family members during the first wave of the COVID-19 pandemic. Methods: Exploratory qualitative study using narrative inquiry was used. This study was guided by the concept of coronaphobia and Family Systems Nursing as conceptual frameworks. Face-to-face and telephone interviews were conducted from September to November 2020 with 14 health professionals, including nurses and physicians and one of their family members (n = 14). Findings: Three descriptive themes were identified which highlight professional-family dyads' experience of coronaphobia as a reciprocal and relational process. Coronaphobia was demonstrated by unknown or close people, in a disguised or explicit way, and generated suffering in the dyads and in the family unit. Consequently, individual and/or family strategies were developed to allow for the protection of the family system and the maintenance of its functioning. Discussion: This study describes how the dyads of health professionals and their family members identify the experiences of coronaphobia. In addition, it was possible to analyze the repercussions of coronaphobia on the dyad and the strategies they used to deal with it. Conclusions: This study extends understanding about the relationships between the experience of coronaphobia among health professionals and one of their family members and the experience of physical, cognitive and emotional suffering during the COVID-19 pandemic. © 2022
Open Access
Metasíntesis sobre el hombre como padre y cuidador de un hijo hospitalizado
(Universidad de São Paulo, 2017) Dos Reis, Susana Maria Garcia; Leite, Ana Carolina Andrade Biaggi; Alvarenga, Willyane de Andrade; Araújo, Jeferson Santos; Zago, Márcia Maria Fontão; Nascimento, Lucila; Ciencias de la Salud; Osasun Zientziak
Objetivo: identificar, analizar y sintetizar los resultados de estudios cualitativos primarios que discuten la experiencia del padre en el cuidado al hijo hospitalizado. Método: se trata de metasíntesis cualitativa por medio de la cual fueron analizados 12 artículos, seleccionados en las bases de datos Cumulative Index to Nursing and Allied Health Literature, Literatura Latinoamericana y del Caribe en Ciencias de la Salud, Public Medline, Scopus, PsycINFO y Web of Science, publicados entre 1995 y 2015. Las etapas metodológicas propuestas por Sandelowski y Barroso se utilizaron para sistematizar la revisión, así como conceptos de la antropología de las masculinidades, para análisis y discusión de la síntesis. Resultados: la síntesis fue presentada por dos temas: 1) dilemas paternos - lo que el hombre siente y enfrenta durante la hospitalización del hijo, destacando el involucramiento emocional y cambio en la relación familiar y laboral, y 2) identidades paternas - masculinidades reajustadas ante el adolecer del hijo, que revela marcas identitarias y la paternidad reprimida, en el ambiente hospitalario. Ambos temas ilustran los retos y el reajuste de la identidad paterna. Consideraciones finales: conocer las vivencias del padre durante la hospitalización del hijo y la manera como los desafíos para el reajuste de papeles relativos a la masculinidad puede ampliar el alcance de la enfermería, y de los demás profesionales de salud, alertando sobre la importancia de incluir al padre como protagonista o coadyuvante en el cuidado del niño hospitalizado.
Open Access
Quality of life of male breast cancer survivors: a systematic review
(Wiley, 2025-04-30) López Wilson, Arleen; Leite, Ana Carolina Andrade Biaggi; Soto Ruiz, María Nelia; Escalada Hernández, Paula; García Vivar, Cristina; Ciencias de la Salud; Osasun Zientziak
Introduction: Breast cancer treatments signifcantly infuence the quality of life of cancer survivors. While most studies havefocused on female breast cancer survivors, data on the quality of life of men who have undergone medical, surgical or radiologicaltreatments for breast cancer are limited. Objective: To evaluate the quality of life of male breast cancer survivors. Methods: A systematic review was conducted according to the PRISMA statement with a search in four databases: PubMed,Embase, Cochrane and Web of Science. We screened and extracted data and assessed the methodological quality of the studies viathe Cochrane RoB-2 and ROBINS-I tools for randomised clinical trials and follow-up studies, respectively. Te data werepresented in a narrative synthesis format. Results: In total, 993 records were identifed, of which three studies were included for analysis: two randomised clinical trials andone cohort study. Te interventions in the randomised clinical trials involved evaluating the impact of endocrine therapy and theimplementation of online physical training. Although there was a reduction in the overall quality of life during cancer treatment,patients who received tamoxifen monotherapy did not report a clinically signifcant change in their sexual function. Additionally,moderate exercise was shown to improve physical health and enhance social well-being. In the cohort study, quality of life andsymptom burden were evaluated in men with breast cancer treated with endocrine therapies at the time of diagnosis via symptomassessment scales. Conclusions: Male breast cancer survivors experience a decrease in quality of life during and after treatment. While tamoxifenmonotherapy preserves sexual function, moderate-intensity physical rehabilitation signifcantly improves both quality of life andsocial functioning. Te limited number of studies included in this review highlights the need for further research to address thephysical, psychological and social needs of male breast cancer survivors.
Open Access
Violência contra mulheres lésbicas/ bissexuais e vulnerabilidade em saúde: revisão da literatura
(Sociedade Portuguesa de Psicologia da Saúde, 2021) Souza, Carolina de; Oliveira-Cardoso, Érika; Oliveira, Wanderlei Abadio de; Nascimento, Lucila; Araújo, Jeferson Santos; Leite, Ana Carolina Andrade Biaggi; Neris, Rhyquelle Rhibna; Name Risk, Eduardo; Braga, Iara; Dos Santos, Manoel; Ciencias de la Salud; Osasun Zientziak
Violence and psychosocial stressors related to experiences of discrimination based on sexual orientation are associated with negative health outcomes and decreased life expectancy of lesbian and bisexual women across the lifespan. This study aimed to analyze the scientific production regardind violence perpetrated against homosexual and bisexual women. The integrative review included articles published in the period 2006 to 2019, indexed in the PubMed, LILACS and PsycINFO databases, based on the descriptors in health sciences: violence against women, female homosexuality, bisexuality, battered women, health. Eleven articles were selected, most of them show cross-sectional, descriptive and quantitative design. The results show that the LGBT population as a whole is recurrently subjected to various types of violence, especially women who are part of this social segment, which are doubly victimized, since violent manifestations due to sexual orientation overlap with gender violence. Violence against lesbian and bisexual women represents a serious public health problem, aggravated by the fact that it remains hidden by a veil of invisibility.