Quality of life of adolescents and young adult survivors of childhood cancer: a qualitative study

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dc.contributor.authorNeris, Rhyquelle Rhibna
dc.contributor.authorPapathanassoglou, Elizabeth
dc.contributor.authorLeite, Ana Carolina Andrade Biaggi
dc.contributor.authorGarcía Vivar, Cristina
dc.contributor.authorNascimento, Lucila
dc.contributor.departmentCiencias de la Saludes_ES
dc.contributor.departmentOsasun Zientziakeu
dc.contributor.departmentInstitute of Smart Cities - ISCen
dc.date.accessioned2024-12-04T10:39:01Z
dc.date.issued2024-11-11
dc.date.updated2024-12-04T10:24:42Z
dc.description.abstractAims: to analyse how adolescents and young adults who survived childhood cancer experience their quality of life and to ex-plore their meanings and conceptualisations of quality of life. Design: narrative design following Squire's method. Methods: in-person and virtual recruitment, due to the global COVID-19 pandemic, was carried out in Brazil between May and November 2021. Eighteen semi-structured virtual interviews were conducted with childhood cancer survivors. These data wereanalysed using reflexive thematic analysis and employing a triangulation of investigators. Results: four subthemes were identified, encompassing participants' perceptions and meanings of quality of life. Through thereflection and synthesis of these subthemes, a central theme emerged entitled "New self", capturing the profound impact of thecancer and survival experience on every aspect of the self, along with participants' sense of having gained "a new life" and a "sec-ond chance". Conclusion: the study provides a rich and nuanced understanding of quality of life for childhood cancer survivors. The results highlight that after all the changes in life due to cancer, integrating the new self becomes a central aspect of quality of life forsurvivors. Implications for the Profession and/or Patient Care: recognising the profound shifts in self-perception that survivors of childhood cancer undergo, nurses should engage early in empowering patients and families, offering education, space and sup-port to help adolescents and young adults grow throughout their journey. Impact: the richness and depth inherent in qualitative data on quality of life can inform the development of care standards and health policies for survivors, guide the allocation of strategic resources and shape the development of plans and interventions focusing on childhood cancer survivors. Reporting method: the COREQ checklist was used. Patient or Public: no patient or public contribution.en
dc.description.sponsorshipResearch reported in this publication was supported by the Coordenação de Aperfeiçoamento de Pessoal de Nível Superior-Brazil (CAPES)-Finance Code 001 and the Conselho Nacional de Desenvolvimento Científico e Tecnológico (CNPq), Brazil, Process n 2022-1395 and n 200580/2022-1.
dc.embargo.lift2025-10-22
dc.embargo.terms2025-10-22
dc.format.mimetypeapplication/pdfen
dc.format.mimetypeapplication/msworden
dc.identifier.citationNeris, R. R., Papathanassoglou, E., Andrade Biaggi Leite, A. C., García-Vivar, C., Nascimento, L. C. (2024). Quality of life of adolescents and young adult survivors of childhood cancer: a qualitative study. Journal of Advanced Nursing, 1-12. https://doi.org/10.1111/jan.16608.
dc.identifier.doi10.1111/jan.16608
dc.identifier.issn0309-2402
dc.identifier.urihttps://academica-e.unavarra.es/handle/2454/52640
dc.language.isoeng
dc.publisherWiley
dc.relation.ispartofJournal of Advanced Nursing (2024)
dc.relation.publisherversionhttps://doi.org/10.1111/jan.16608
dc.rights© 2024 John Wiley & Sons Ltd.
dc.rights.accessRightsinfo:eu-repo/semantics/embargoedAccess
dc.subjectAdolescenten
dc.subjectCanceren
dc.subjectQualitative researchen
dc.subjectQuality of lifeen
dc.subjectSurvivalen
dc.subjectYoung adulten
dc.titleQuality of life of adolescents and young adult survivors of childhood cancer: a qualitative studyen
dc.typeinfo:eu-repo/semantics/article
dc.type.versioninfo:eu-repo/semantics/acceptedVersion
dspace.entity.typePublication
relation.isAuthorOfPublication90fe0c7a-2ad8-46ec-9bbf-b939a93ec431
relation.isAuthorOfPublication13ab6875-5e88-486f-8fab-b5947b5b5b9b
relation.isAuthorOfPublication.latestForDiscovery90fe0c7a-2ad8-46ec-9bbf-b939a93ec431

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