A paradigm shift on deinstitutionalization and dementia care: a narrative review

Date

2024-05-13

Authors

Escalada San Adrián, Gema
Minobes-Molina, Eduard
Pàmies-Tejedor, Sandra
Atarés-Rodríguez, Laura
García-Navarro, José Augusto

Director

Publisher

SAGE
Acceso abierto / Sarbide irekia
Artículo / Artikulua
Versión aceptada / Onetsi den bertsioa

Project identifier

Impacto
OpenAlexGoogle Scholar
cited by count

Abstract

This narrative explores the impact of deinstitutionalization policies on the quality of life and care outcomes for individuals with Alzheimer's disease and related dementias. We offer a historical perspective on these policies, their implications on dementia care, and the barriers to deinstitutionalization. The potential benefits of deinstitutionalization, such as improved quality of life and access to community-based support and services, are highlighted. Challenges and controversies surrounding safety, caregiver burden, and resource allocation are also examined. Ethical considerations related to the autonomy and decision-making capacity of people living with dementia are discussed. We present best practices and innovative models in dementia care that balance deinstitutionalization with appropriate care. We further put forth recommendations for future research and policy development in dementia care and deinstitutionalization, emphasizing the need for a balanced approach that respects the autonomy and preferences of people living with dementia while ensuring their safety and well-being.

Description

Keywords

Alzheimer's disease, Care outcomes, Caregiver burden, Community-based support, Deinstitutionalization, Dementia care, Ethical considerations, Policy development, Quality of life, Resource allocation

Department

Ciencias de la Salud / Osasun Zientziak

Faculty/School

Degree

Doctorate program

item.page.cita

Carcavilla-González, N., Escalada San Adrián, G., Minobes-Molina, E., Pàmies-Tejedor, S., Roncal-Belzunce, V., Atarés-Rodríguez, L., García-Navarro, J. A. (2024) A paradigm shift on deinstitutionalization and dementia care: a narrative review. Journal of Alzheimer's Disease, 99(3), 829-841. https://doi.org/10.3233/JAD-231180.

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© 2024 - IOS Press.

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